Research Opportunities

• DS-Connect®: The Down Syndrome Registry: A registry for people with Down syndrome
  • DS-Connect®: The Down Syndrome Registry is a voluntary, confidential, online survey that collects basic health information about people with Down syndrome. Click Here to Learn More
• Lumind IDSC Foundation: A Down Syndrome Research Community
  •  Lumind IDSC Foundation accelerates research and clinical trials to increase availability of therapeutic, diagnostic, and medical care options to empower families through education, connections, and support.  Families can find opportunities to participate in research surveys, focus groups, and clinical studies to help advance understanding of Down syndrome health and independence. Click Here for More Information
• Global Down Syndrome Foundation: Dedicated to significantly improving the lives of people with Down syndrome through RESEACH, MEDICAL CARE and ADVOCACY

The Global Down Syndrome Foundation is part of a network of affiliate organizations that work closely together on a daily basis to improve the lives of people with Down syndrome. Click Here to Learn More

“Life-DSR (Longitudinal Investigation for the Enhancement of Down Syndrome Research)” – Dr. Alberto Costa, Case Western Reserve University

The purpose of this study is learn more about the physiology of people with Down syndrome to gain insight into the connection between Down syndrome and Alzheimer’s disease.  LIFE-DSR aims to address the questions of why the rate of Down syndrome related Alzheimer’s disease is so high, and what therapies and treatments can be developed to prevent it. Research Details Here | Participating Information Here | What is Life-DSR