Research Opportunities

Down Syndrome Association of Central Ohio / Get Involved / Research Opportunities

Advancing the Science

Research can improve the health and lifespan of people with Down syndrome.  However, for many researchers to gain data, they must rely on information from individuals and their families. Advancements can only happen when we participate in research by enrolling in an in-person study or completing an online survey. Help DSACO improve health outcomes for people with Down syndrome by engaging in research!

To hear about current online surveys and in person studies, or to sign up to receive our quarterly research opportunities e-blast, please reach out to DSACO’s Program Coordinator of Medical Outreach, Katie Garcia at kgarcia@dsaco.net or 614-263-602- ext. 1030.

Down Syndrome Registry

  • DS-Connect®: The Down Syndrome Registry: A registry for people with Down syndrome
    • DS-Connect®: The Down Syndrome Registry is a voluntary, confidential, online survey that collects basic health information about people with Down syndrome. Click Here to Learn More
  • Lumind IDSC Foundation: A Down Syndrome Research Community
    •  Lumind IDSC Foundation accelerates research and clinical trials to increase availability of therapeutic, diagnostic, and medical care options to empower families through education, connections, and support.  Families can find opportunities to participate in research surveys, focus groups, and clinical studies to help advance understanding of Down syndrome health and independence. Click Here for More Information
  • Global Down Syndrome Foundation: Dedicated to significantly improving the lives of people with Down syndrome through RESEACH, MEDICAL CARE and ADVOCACY

The Global Down Syndrome Foundation is part of a network of affiliate organizations that work closely together on a daily basis to improve the lives of people with Down syndrome. Click Here to Learn More

Life-DSR Study

“Life-DSR (Longitudinal Investigation for the Enhancement of Down Syndrome Research)” – Dr. Alberto Costa, Case Western Reserve University

The purpose of this study is learn more about the physiology of people with Down syndrome to gain insight into the connection between Down syndrome and Alzheimer’s disease.  LIFE-DSR aims to address the questions of why the rate of Down syndrome related Alzheimer’s disease is so high, and what therapies and treatments can be developed to prevent it. Research Details Here | Participating Information Here | What is Life-DSR

Support a Lifetime of Opportunities